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Patient Focus Could Shield PCORI From Controversy When Findings Contradict Accepted Standards

Executive Summary

Having patients involved in all facets of the research process could help protect the Patient-Centered Outcomes Research Institute from controversy should research findings contradict generally accepted standards of care, speakers at a comparative effectiveness summit said.

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The Patient-Centered Outcomes Research Institute approved its priorities and research agenda May 21, and revealed funding amounts for clinical comparative research the following day. But, as the board of governors’ discussion showed, one of PCORI’s biggest challenges remains how to bring in nontraditional researchers to help give its research a uniquely patient-centered focus.

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Draft checklist would ask researchers for ideas on involving stakeholders, “engagement points,” and ways to disseminate research results, indicating PCORI will ask researchers to think outside of their typical approaches such as journal publication or scientific meetings.

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