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Drug Approval Standards Rare Diseases Research & Development

Power Of Rare Disease Patient Registries Touted By US FDA, Patients

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Executive Summary

Patients describe how they connect with each other and advance research through registries; agency says it has accepted registry data as real-world evidence of a product's benefit.
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Drug Approval Standards Rare Diseases Research & Development
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This copy is for your personal, non-commercial use. For high-quality copies or electronic reprints for distribution to colleagues or customers, please call +44 (0) 20 3377 3183

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