Clinical Research Agendas Get A Boost From Social Media
This article was originally published in The Pink Sheet Daily
Women who survived a rare cardiovascular event banded together online and approached Mayo Clinic investigators with a research agenda, and AstraZeneca is using a YouTube video to find Internet-savvy patients who might be reluctant to reach out about their condition.
You may also be interested in...
Rare Disease R&D: FDA To Use NIH Registry For Natural History Studies
NIH plans to select two dozen groups to participate in a Global Rare Disease Patient Registry pilot project, which FDA hopes will lead to a better understanding of the conditions and speed drug development.
FDA Proposals For Studying Internet Promotions Raise Concerns
FDA should not delay draft guidance on Internet and social media promotional activities while it studies how consumer understanding of a drug’s safety and efficacy is affected by the techniques used to present information on branded websites, according to comments on the proposed studies.
Myeloma Foundation Uses Patient Connections To Help Speed Drug Trials
Bolstered by a huge patient database, the Multiple Myeloma Research Consortium is helping to speed trials of new therapies, including some of the most talked about investigational drugs in the disease space, like carfilzomib and pomalidomide.