PatientsLikeMe Developing Platform To Validate Patient-Reported Outcomes
While the primary objective will be to help members of the online patient community better manage their health, the new platform will offer an opportunity for pharmaceutical companies to validate patient-reported outcomes that they develop, something that could be useful as PROs gain more traction in the FDA review process.
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Under the five-year research collaboration, Genentech will have broad access to the online patient network PatientsLikeMe, which has 250,000 members.
Despite the promise electronic health records hold for comparative effectiveness research, clinical information needs to be lined up with claims data to get a more complete picture, Optum Labs’ William Crown said during the recent Comparative Effectiveness Summit.
Former FDA CIO Perakslis joins IT consultancy; Former DoJ FCA litigator May joins Arnold & Porter; PatientsLikeMe names researchers to pilot test new PRO validation tool; more personnel announcements in this month’s column.