Building Data Infrastructure For PCORI Research Should Start Now, NIH’s Collins Says
NIH Director Collins, a member of the Patient-Centered Outcomes Research Institute board of governors, offered his vision of a data infrastructure that would enable PCORI to maximize its research capabilities while minimizing costs of conducting research. At the same PCORI-sponsored workshop, Institute Executive Director Joe Selby described the main characteristics a national data infrastructure should offer.
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The Patient-Centered Outcomes Research Institute plans up to $68 million in grants to develop two types of national data networks: clinical data research networks and patient-powered research networks.
Patient-Centered Outcomes Research Institute plans up to $68 million in grants to develop two types of national data infrastructure, one aimed at clinical data research networks and the other at patient-powered research networks, that together can help researchers across all spectrums of health care develop robust comparative health care data.
As the Patient-Centered Outcomes Research Institute opens the public comment period for its draft methodology report, criticisms on the institute's direction are beginning to surface, including accusations that it is becoming just another AHRQ or NIH.